The Trustees of the Charity are sorry to report that we are in the midst of a funding crisis

Our donations have fallen over the past few years, whilst our membership and the number of families we are supporting is constantly rising.

At the time of writing we have approximately 6 months running costs  after which time we will no longer be able to function.

If you are able to undertake a Fundraising event, please let us know – literally ALL funds go to help support families affected by the condition and we need YOUR help to continue .

We need £5600 per year to print the Erbs Blerb for 1400 families

We need around £9000 per year for postage

We need about £12000 per year for the Fun Day

We need £5000 per year to train Midwives and Obstetricians in best Practice Techniques to avoid injuring more babies

We need around £2000 per year for travel costs for Trustees to attend meetings, the Conference and the Family Fun Day

These are just

Does your Company offer Match Funding ? if you fundraise would they match the amount ?     it’s worth asking

Could you organise a dress down day at work ?

Host a cake sale ?

Nominate our Charity to be the your Charity of the Year at work ?

even the smallest donation will ensure we can continue supporting families

You can donate a variety of ways – by the donate button on this website

by Text  simply text

  • ERBS01 to 70070  and you can add your donation amount £3/£5/£10.

You can raise funds every time you shop online if you register with Easyfundraising – the retailer pays us a % donation for each purchase you make- you don’t pay any extra – why not register today?

If you sell items on e bay – we are registered with them as a charitable cause- you can donate a % of your final sale value to our Charity

Please help us to continue helping other families

you can contact us at