Useful ArticlesInformation SheetsWeb Links

More Information

The Erb’s Palsy Group hold a number of helpful and very useful information sheets which we hope will help you and your child.

 

The following can be obtained from Karen Hillyer.

Please send a large SAE to the address below stating which information sheets you require to: Erb's Palsy Group , 60 Anchorway Road, Coventry. Warwickshire CV3 6JJ

 

Fact Sheet 1 Obstetrical Erb's Palsy
Fact Sheet 2 Nerve Grafts
Fact Sheet 3 Shoulder Release.
Fact Sheet 4 Latissimus Dorsi Tendon Transfer
 
Claiming Disability Living Allowance
Claiming Invalid Care Allowance
Attending a DLA Tribunal
Obtaining your Maternity Records
 
Staying In Hospital Derby Childrens Hospital, Derby.
  The Portland, London.
  Leeds General Infirmary (LGI), Leeds
 
Making A Clinical Negligence Claim
 
Toys and Equipment
 
Information for schools Nursery and Primary schools
  Middle and Upper schools
 
Preparing for secondary school tips for students
Moving up to secondary school tips for parents
Useful Articles
One handed recorder Becky tells us about son David's musical talent
Post Traumatic Stress Disorder A personal experience
Baby Massage helping your baby feel secure and loved
Sensory Box I really wanted to share with you all about our "Sensory Treasure Box"
Serial Casting A mother tells us about her sons treatment
Breast Feeding a baby with Erb's Palsy some tips on positioning your baby
Learning to Drive with Erb's Palsy some helpful information for would be drivers
E Bay selling want to help raise money for the group?
Web Links


A difficult birth: what is shoulder dystocia? Information for you click here

 

Aids & Equipment

Abilitynet Organisation whose aim is to make the benefits of using computers available to disabled children and adults.
BetterWare Direct sales company introducing a new range called Independent Living. Some useful items for poor hand grip etc.
Lakeland Catalogue offering items to help make life that bit easier for disable adults and children
Raggy-tag Blankets Raggy-tag blankets - sensory stimulating blankets for babies.
Savlon Plasters for those clumsy little cherubs. Savlon ActivHeal speeds up the natural healing process

 

Children/Childcare

KidActive (formerly HAPA) - National charity promoting play for children who have disabilities.
Snap Childcare Provides Au Pairs,Respite Carers as well as Mother's help and Nannies.

 

Fund-raising

Easy Fund Raising For hassle free fundraising for our group, why not sign up with easy fundraising - simply sign up and select The Erb's Palsy Group as your nominated good cause and each time you shop online through easy fundraising, you're retailer will pay the group a percentage of your  total spend at no extra cost to yourself. It's very easy - why not sign up now!
Everyclick Search engine. Donates funds to your chosen Charity just by you using this search engine.
Justgiving Easy way to donate and raise funds online. You can also produce a fundraising page for an event you need sponsorship for. JustGiving have some fabulous ideas for fun things to do to raise money. Or why not ask for a donation instead of a present for your next birthday.

 

Health

Ableize Disability directory of disabled and Health related sites offering advice products and health goods, services, social care and mobility aids under the convenient roof of one web site directory
Botox Web site giving very informative advice on the Botox injections
Child Health Resources Directory of Child Health related websites
MedLine Search Results from the National Library of Medicine and PubMed
Patient UK A directory of health, disease, and related websites from the UK. The site is edited by two GPs.
A difficult birth: what is shoulder dystocia?

 

Other

Family Fund Trust Their purpose is to ease the stress on families in the UK who care for severely disabled children under 16, by providing grants and information related to the care of the child.
Kite Sport in Schools Kite Sports in Schools is an organisation that arranges for Kite enthusiasts to visit schools to share the skills and benefits of Kite flying with students
Practical Parenting Parenting Magazine offering practical advice from conception to pre-schoolers. Lots of interesting articles.
Waterskiing If you fancy a go this site will give more information on the British disabled water-skiing association

 

Support Groups

Birth Trauma Association The Birth Trauma Association, helping women traumatised by childbirth. Some people who suffer shoulder dystocia delivery also have a traumatic birth and vice versa. This site also has an article about the Erbs Palsy Group.
British Youth Council The British Youth Council is the representative body for young people in the UK. An independent charity, run for and by young people it represents their views to central and local government, political parties, pressure groups and the media.
TBPIG Trauma Brachial Plexus Injury Group
The Arthrogryposis Group Link to the National Support Group for people affected by Arthrogryposis
SANDS Stillbirth and Neonatal Death Society